It provides information, assistance, and support of various kinds through its local chapters and through its MS Navigators, who are available to chat online or by phone. Multiple Sclerosis Association of America. Check out its calendar of events for free educational presentations around the United States and Puerto Rico.
Try out its My MS Manager app to track the disease activity, store your medical information, and generate charts and reports.
The app is available for both Android and iOS devices and is free for individuals with MS and their caregivers. MS Focus. MS Focus offers a variety of grant programs to provide assistive technology, laptop computers, emergency living assistance, homecare, and cooling items.
The website also provides a directory of MS support groups and lists live events focused on MS education, fundraising, and wellness activities. International Progressive MS Alliance. Progressive forms of MS, which include primary- and secondary-progressive MS, can cause significant physical and cognitive disability, and until recently, no drug treatments have been available for these forms of MS. The Progressive MS Alliance is working to change the lives of people with progressive MS by conducting more and better studies to hasten the development of drug treatments and other therapies for those affected.
The MS Coalition brings together nine member organizations with a shared commitment to improving the lives of people with MS. It provides a quick way to find out which of these organizations might have programs that are helpful to you. Race to Erase MS. And while the ticket price of the gala may be a bit steep for ordinary people, the MS Forum and Expo that happens the next day is free and open to the public, and offers access to some of the top MS researchers in the United States.
Mayo Clinic. MS TeamWorks. One way to feel less alone with MS is to listen to other people talk about their situation. The Consortium of Multiple Sclerosis Centers has put together a collection of videos featuring people living with MS as well as doctors, nurses, and other healthcare professionals who treat MS.
When you join iConquerMS, you contribute information about your MS history, symptoms, and treatments. Researchers then use your information, along with that of thousands of other people living with MS, to look for patterns and clues about the causes of MS and the best ways to treat it. There are lots of great blogs out there by people with MS, but the advantage of subscribing to MultipleSclerosis.
Yes, they all share the diagnosis of multiple sclerosis , but they each have their own experiences, concerns, and perspective on life, MS, and the intersection of the two.
RealTalk MS. Every week host Jon Strum tackles another MS topic, from stem cell transplants to advances in rehabilitation to healthcare legislation that could affect people with MS. Listen in as he interviews scientists, activists, MS caregivers, and others whose lives have been affect by MS.
For another, it seems likely that people with MS with higher disability levels have a higher risk of developing complications if they were to contract COVID Keeping in touch with your MS care providers during this time is important, and the broader availability of telemedicine in the United States since the pandemic started has made it safer and, for some, easier to do that.
All of the major MS patient advocacy organizations as well as many smaller ones have fact sheets, helplines , webinars, chats, exercise videos, and more than can help you stay informed and connected. By subscribing you agree to the Terms of Use and Privacy Policy. Multiple Sclerosis MS. Johns Hopkins Medicine. Malignant Multiple Sclerosis.
Social Security. Bladder Problems. Breathing Problems. Health Topics. Health Tools. Multiple Sclerosis. Reviewed: August 12, Medically Reviewed. No one knows exactly how multiple sclerosis begins, but most doctors think it starts when an environmental cause, such as a virus, triggers an autoimmune attack in a person who is genetically susceptible to MS.
As the autoimmune attack inflames areas of the myelin sheath protecting the nerve fibers, symptoms of MS arise. What are the early signs and symptoms of MS? Vision problems and eye pain are common early symptoms of MS. Others include numbness or tingling of the fingers, face, or other parts of the body; difficulties with balance and walking; and sensitivity to heat, which may show up as feeling dizzy, faint, or unusually uncomfortable in warm temperatures or in a warm shower or bath.
What effects does MS have on your body? Most people with MS have fatigue. Many have balance difficulties, numbness, muscle spasticity, and bladder problems.
Some people have thinking and memory problems because of MS. Can MS ever go away on its own or with treatment? No, MS does not go away on its own. Disease-modifying drugs can reduce relapses and slow the overall progression of the disease. Stem cell transplants have also begun to show promise in slowing or stopping progression. Rarely, a person's MS is "benign" and progresses very little after the initial symptoms. But most people's MS worsens over time. Can a person die from multiple sclerosis?
Most people with MS do not die from it, although some studies suggest it shortens life expectancy by six or seven years. What can kill people with MS are complications of the disease, including lung infections pneumonia and sepsis, a life-threatening response to infection. Cardiovascular diseases are also a major cause of death of people with MS.
Relapsing-Remitting MS RRMS This type of MS is characterized by periods of active inflammation in the central nervous system, during which symptoms worsen and new symptoms may develop , alternating with periods when symptoms are less acute. Malignant MS A small number of people with MS have malignant MS, which is marked by the rapid formation of lesions in the brain and spine, causing severe symptoms, disability, and possibly death. What happens in MS MS is an autoimmune condition, which means your immune system mistakes part of your body for a foreign substance and attacks it.
In the case of MS, it attacks the myelin sheath in the brain and spinal cord. These patches of inflammation can disrupt the messages travelling along the nerves. This disruption leads to the symptoms and signs of MS. A type known as myelin basic protein is the most well-studied myelin protein. The activated T cells travel through blood vessels and enter the CNS. When this happens, they release a variety of molecules that lead to inflammation and tissue damage.
One type of T cell, called a regulatory T cell, normally works to slow the inflammatory response. This allows inflammation and tissue damage to continue. B cells are the immune cells that produce antibodies.
They can be activated by a type of T cell called a helper T cell. Scientists are still seeking to uncover what causes these cells to become activated and attack. Several genes are believed to play a role in MS. Your chance for developing MS is slightly higher if a close relative , such as a parent or sibling, has the disease.
If your parent or sibling has MS, your lifetime risk for getting the disease is estimated to be around 3 percent. The average chances that any person will develop MS are between 0. Many people who have MS also have a relative with MS. To illustrate this, a cohort study followed people who had been diagnosed with MS to see if their relatives also developed the condition.
Researchers found that 49 out of the individuals or A total of 86 affected relatives were reported. Many of these genes are involved in the regulation of the immune system or immune responses.
Instead, research suggests that MS is a polygenic condition. Scientists believe that genetic risk factors interact with environmental and infectious risk factors to contribute to the immune system dysfunction observed in MS. Environmental factors are things that you encounter in your surroundings.
Various environmental risk factors have been linked to MS risk. Some of these include:. Of these, a review found that low vitamin D or low sun exposure were moderate environmental risk factors for MS. Air pollution and organic solvents were considered to have a weaker association.
Vitamin D benefits immune system function. Sun exposure is an important source of vitamin D, although this nutrient can also be obtained in smaller amounts through diet or supplementation. Epidemiologists have seen an increased pattern of MS cases in countries located farthest from the equator, indicating that vitamin D may play a role. People who live near the equator are exposed to more sunlight.
As a result, their bodies produce more vitamin D. What led Trishna to become a health and disability advocate? When will people with MS get a covid vaccine? Who gets MS and why? Would having children be impossibly hard for me, my partner, and the children themselves?
Research Brain training: a cognitive rehabilitation programme evaluated Can standing frames improve mobility in progressive MS?
Do medicines reduce fatigue in MS? Effect of vitamin D supplements on MS activity Exercise is good for your brain How do families affected by MS manage health information? How does multiple sclerosis affect dating and romantic relationships? How long does it take for an MS drug to be fully effective? Learning a second language improves brain structures in MS MRI reveals smouldering MS lesions MS onset in childhood: do disease modifying drugs delay long term disability? Stem cell transplants in the news Temelimab: early clinical trial suggests potential for remyelination Testing iStep-MS, a new programme to encourage physical activity Treatments for foot drop compared Tysabri risk of PML with extended interval dosing.
This means that the risk of other members of your family getting MS is small. Vitamin D. Read more about smoking and MS. Combined factors. References Sadovnick AD, et al. A population-based study of multiple sclerosis in twins: update.
Annals of Neurology ;33 3 Summary Banwell B, et al. Clinical features and viral serologies in children with multiple sclerosis: a multinational observational study. Lancet Neurology ;6 9 Summary Ramagopalan SV, et al.
Relationship of UV exposure to prevalence of multiple sclerosis in England. Neurology ;76 16 Summary Handel AE, et al.
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